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A care plan records what is done to a person. This records who they are.

Somewhere in every care home there is a woman on the quiet corridor described in her notes as "pleasant, compliant, requires assistance with personal care". She ran a school for thirty years. Nobody currently on shift knows that. The Personhood Profile exists so that they do.

Write my own profile, free For care homes

Two versions of the same idea

Written by the person, or built with their family

They produce the same thing: a rich, usable, printable record of a whole human being. The only difference is who holds the pen, and when.

For individuals and families

My Personhood Profile

You write it. In the first person, in your own words, at any point in your life. Ideally long before anyone else needs it, and certainly in the months after a diagnosis while everything is still clear.

Thirteen parts, written as you would speak
What to call me, and what never to call me
What helps me, what makes things worse
The music and the films that reach me
Dates that matter, and why they matter
Carries weight as an advance statement in law
Give it to a care home before admission, not after

Free, alwaysNo account, no sign-up, no email address, no card.

Start my profile

For care homes and care teams

The Personhood Profile

Built by the home with the family, usually in the first fortnight, and added to for as long as the person is with you. Sits alongside the statutory care plan rather than replacing any part of it.

Fourteen sections, structured for a keyworker
Working life read for what it still means today
Music and video links that play at the bedside
Anniversaries and family dates, not just birthdays
Early signs of distress, and what actually works
A one page care card for the back of the door
Evidence of person centred care under Regulation 9

£49 per month, per home. Unlimited residents, unlimited staff, cancel any time.

Start a free fortnight

Or subscribe now. Already subscribed? Open the builder

Why it goes further

What a one page leaflet cannot do

The Alzheimer's Society "This is Me" leaflet was a genuine step forward and thousands of homes still use it. It is also a single sheet of paper that gets filed. This is what happens when you give the same idea room to breathe.

It reads a working life

Type in what someone did for a living and the profile tells you what it still means. A man who ran a company for thirty years is not being difficult when he bristles at being called "sweetheart". He is being spoken to like a child for the first time in his adult life, and every instinct he has is correct.

The music actually plays

A song title written on a form is a song nobody plays. Links sit inside the profile and open at the point of care, on the phone in the carer's pocket, at three in the morning when the person is frightened and words are not working.

It knows what today is

Not only birthdays. The wedding anniversary of a marriage that ended in widowhood. The date a son died. The day the pit closed. The profile surfaces this month's dates so that nobody walks into a room cheerfully wondering why she is crying.

It is a second brain, not a form

People keep the things that hold them together in notebooks and phones and shoeboxes. This does the same job in one place: the names, the habits, the private jokes, the way the tea is made, the reason the belongings on the windowsill must not be tidied away.

It fits on one page when it has to

Nobody reads forty pages on a busy shift. Every profile produces a one page care card: never call me, what helps, what makes it worse, early signs, play this if I am distressed, dates this month, who I was. Print it and it is on the wall in two minutes.

It travels with the person

Save it as a file, keep it, email it, hand it over. It moves from home to hospital to home again without anybody having to start from nothing, and without a family repeating the same story to the fifth professional in a fortnight.

Where this came from

Eight years of watching people be misread

I spent eight years working in care homes. In that time I watched people be sedated for behaviour that was not a symptom of anything except being placed in a building that did not suit them and cared for by people who had never been told who they were.

A resident kept her things out on every surface. Housekeeping tidied them away each morning because it looked untidy, and each morning she became distressed and was recorded as agitated. Nobody had ever asked why the objects were out. For a brain like hers, out of sight is genuinely gone. The tidying was not kindness. It was the daily removal of her memory.

Everything a care home needs in order to get this right, the person or their family already knows. We simply never ask, and when we do ask we write it on a form nobody opens again.

That is the whole idea. Ask properly, once. Record it in a way that is actually usable at four in the morning by an agency carer who has never met the person before. And let the person themselves write it, while they still can, in their own words rather than in a professional's summary of them.

Kerry Billson. Founder of ADHDementia, doctoral researcher in ADHD and dementia, and someone with ADHD herself.

The handover

Getting it to the people who will care for you

A profile nobody reads is just a document. Here are the three ways it gets from the person who wrote it into the hands of a care team, in order of how much of it survives the journey.

Print it and hand it over

Print the profile and take it to the pre-admission meeting. Ask for it to go in the care file and ask for the one page summary to go somewhere staff will actually see it. Works with any home, any system, no technology involved. The limitation is that it stays on paper: nobody can search it, and if it is copied by hand something is always lost.

Email the file, and the home imports it

This is the one to ask for. Click Save to file, attach the file to an email, and send it to the manager. If the home subscribes to the Personhood Profile, they open the builder, choose Open or import a file, and everything you wrote appears in their system in your own words. Nothing is retyped and nothing is summarised by a stranger.

Both, which is what we would do

Email the file so the content is live in the home's system, and take a printed copy to the meeting so there is something in your hand while you talk. The conversation you have while handing it over is worth as much as the document: it tells the manager this family is paying attention, and homes respond to that.

What the care home sees. When a profile written by the person is imported, it is marked as their own words rather than a staff assessment, and the home is asked to add only what it alone can know: how the person is settling, what staff are seeing on shift, and how each part is best used day to day. Nothing you wrote is overwritten or edited away.

If the home does not subscribe. Print it, and send them here. Homes are not charged to receive a profile and a manager can read this page and start a free fortnight the same afternoon. If your home will not engage at all, the printed copy in the care file still carries weight in law as a statement of your wishes.

What it costs

Free for the person. A subscription for the home.

If you are writing about yourself or someone you love, it costs nothing and it never will. If you are a care home putting it to work across your residents, it is a subscription.

My Personhood Profile

Free always

For individuals and families

Every section, every feature, no limit
No account, no email address, no card
Save it, print it, share it with anyone you choose
Give it to a care home before admission

Start writing

For care homes

The Personhood Profile

£49 per month

Per home, cancel any time

Unlimited residents and unlimited staff, not per bed and not per licence
The occupation insight engine, music and video links, significant dates and the one page care card
A fortnight's free trial first, with no card
Will be included at no extra cost in Care Home Membership when it opens
Profiles are saved as files on your own device and stay yours if you cancel

Start the free trial

Seen enough? Subscribe now, £49 a month

Care planning software is normally charged per bed per month, so a forty bed home can pay anywhere from £80 to £200 a month for one system. This is a single flat fee whatever your size, and it is not a care planning system: it sits alongside whatever you already use. If you also want your staff trained, the live open webinar runs twice a month at £65 a place, and Care Home Membership opens at £84 a month once the online course completes accreditation.

Your information

Nothing you type is ever sent to us

This matters more here than anywhere else on the site, because what goes into a Personhood Profile is deeply personal. So the design is simple: there is no server to send it to.

It stays in your browser

Everything you enter is saved on the device you are using, so you can close the page and come back to it. It is never transmitted anywhere.

We never see it

ADHDementia holds no copy, no database and no account. We could not read a profile if we wanted to, and we do not want to.

You control who gets it

Save the profile as a file and share it with exactly the people you choose: a care home, a hospital, a family member, a solicitor.

Care homes stay compliant

Because the data never leaves the home's own device, using the profile does not create a new processor relationship or a new data flow to assess.

One consequence worth knowing: if you clear your browser data or change device without saving your file first, the profile is gone and we cannot recover it. Save your file regularly. Read the full privacy policy.

Where this sits in law. A profile written by the person themselves is a statement of their wishes, feelings, beliefs and values. Under the Mental Capacity Act 2005, anyone making a decision on behalf of someone who lacks capacity must take those wishes into account. That gives the profile real weight. It is not, however, an Advance Decision to Refuse Treatment, and it is not a Lasting Power of Attorney. It cannot refuse medical treatment on your behalf and it does not appoint anyone to act for you. If you want either of those, speak to a solicitor.

For care homes. The Personhood Profile supports your care plan. It does not replace it. Your statutory documentation, risk assessments and records remain exactly as they are.

Start where you are

Ten minutes now saves a stranger years of guessing

You do not have to finish it in one sitting. Answer what you can, save it, and add to it whenever something occurs to you. Even a half completed profile tells a care team more than most admissions packs ever will.

Write my own profile, free Start a care home trial

Also reachable at personhoodprofile.com and knowmefirst.co.uk