Out now on Amazon
Recognising lifelong autism and ADHD in residents living with dementia, and changing the room rather than the person. Eighteen chapters, four appendices built to be photocopied, and almost nothing in it that costs money.
How it begins
That is one way of putting it. Here is another.
Margaret has been awake since about five, although nobody knows that, because she has been lying still in the dark. At twenty past seven the door opens without a knock. The overhead light goes on. Two people are in the room and she recognises neither of them, because the home is short-staffed and has called in agency cover.
Margaret says no.
At half past eight it goes in the daily notes. Margaret resisted personal care this morning and struck out at staff. Continues to display aggressive behaviour. Two staff required. GP review requested.
Everything in that entry is true. It is also almost entirely useless, because it describes what Margaret did and says nothing whatever about what happened to her. A description of what a person did, with no account of what was done to them first, is not a clinical record. It is a complaint.
The book returns to Margaret in the final chapter, on the same morning, in a home that asked one extra question about her first.
The argument
The first question is what has changed, and it is the right question, because dementia is defined by decline from a person's own previous functioning. The trouble is that you cannot answer a question about change without knowing where the person started. Change is measured from a baseline, and if the baseline is wrong you will get the wrong answer, confidently, every single time.
So the book adds a second question, to be asked alongside the first rather than after it: who has this person always been? Not in the sentimental sense of what job they did and what music they liked, valuable as that is. How have they always processed the world? Have they always found noise unbearable? Have they always needed to know exactly what would happen and when? Have they always hated being touched without warning?
Ask only the first question and Margaret's notes read: became aggressive during personal care, new behaviour, query dementia progression, consider medication.
Ask both and they read: Margaret has always washed in the evening, has always found unexpected touch difficult, and has never in her life been able to tolerate water on her face.
Same woman. Same morning. One of those entries leads to a prescription. The other leads to a flannel, a different time of day, and a member of staff she recognises.
The contents
Every chapter ends the same way: a page of things to try tomorrow that cost nothing, a plain account of what the evidence does and does not support, and the two questions asked of one real resident.
And four appendices
Being straight with you
It will not teach you to diagnose anybody, and you should be suspicious of anything claiming it can. Diagnosing autism or ADHD in an eighty-six-year-old who also has dementia is genuinely difficult work for specialist clinicians, and nothing in these pages will qualify you to do it. That is not a limitation of the book. It is the point of it. You do not need a diagnosis to turn a television off.
It will not replace clinical assessment, safeguarding processes, medical advice or your own home's policies. If a resident is in pain, or unwell, or at risk, that comes first, and the book will still be there afterwards.
It will not tell you that every difficult moment is somebody's fault. Care homes are often understaffed, underfunded and full of people doing skilled work at speed for very little reward. Nothing in it is written to make a carer at the end of a twelve-hour shift feel worse than they already do.
And it is honest about the evidence. Where something is well established it says so. Where a framework is the author's own reasoning from practice rather than a validated instrument, it says that too. There is very little research on neurodivergent older people living in care homes at all, and the book returns to that gap more than once rather than papering over it.
Who it is for
Registered managers, deputies, dementia leads, nurses, senior carers, quality and training leads, and the people in a group who decide what training gets bought. It is written in plain English, on purpose, because the person it most needs to reach is a carer at the end of a long shift and not a committee.
Families will find it useful too, particularly Chapter Ten and Appendix A, which are the questions worth answering about somebody before they move into a home rather than after.
Build a profile for every resident, not only the ones with a diagnosis. The eight areas describe how a person takes in the world, and everybody takes in the world somehow. A woman who has washed at night since 1961 and cannot bear water on her face needs that written down whether or not anybody ever puts a name to it.